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SUPPORT GROUPS FOR PARENTS OF CHILDREN WITH SPECIAL NEEDS IN SUFFOLK COUNTY, LONG ISLAND

     Home  >  Articles  > Support Groups & Associations
by NYMetroParents Staff October 15, 2013

Related: suffolk county, long island, support group, special needs, kid with special needs, special needs kids, children with special needs, special needs children, ADHD, autism, parent group, caregiver group, support groups for parents and caregivers, ,


UPDATED APRIL 2014: Raising a child with special needs in Suffolk County, Long Island? Find support by connecting with other NYC families, parents, and caregivers in your community who have kids with special needs. Read on to find a group in Suffolk County.

Ariella’s Friendship Circle
The Chai Center of Dix Hills
501 Vanderbilt Parkway, Dix Hills
631-351-8672
[email protected]

This Hebrew school for children with autism and special needs has New York state-certified special educators, individualized curriculum, multi-sensory programming, collaborative learning, dedicated and trained teen volunteers, and inclusion activities with The Hebrew School.

Asperger Syndrome and High Functioning Autism Association
Locations throughout Nassau and Suffolk counties
888-918-9198
[email protected]

Offers daytime and evening meetings to discuss various topics involving the needs of school-aged children. Check website for each group’s specific info.

Autism Society of America
301-657-0881
[email protected]

Provides the latest information regarding treatment, education, research, and advocacy.

Children and Adults with Attention-Deficit/Hyperactivity Disorder Local Chapter of Suffolk County
P.O. Box 414, Centereach
Lorraine Dukich, membership chairperson: [email protected]

This chapter offers a seven-session interactive program for parents and teens that covers developing behavioral intervention plans and analyzing effective parenting strategies for children and teens with behavioral issues.

Developmental Disabilities Institute Parent’s Association
99 Hollywood Drive, Smithtown
631-366-2900

A nonprofit multi-site agency made up of parents, guardians, and friends of children and adults with autism and other developmental disabilities. Provides educational, residential, day habilitation, and vocational services, as well as dental services through Opti-Healthcare.

Eating Disorders
John T. Mather Memorial Hospital
75 N. Country Road, Port Jefferson
631-473-3877 x4853

Monthly support group for people with eating disorders; parents, friends, and spouses welcome. Registration is not required.

Epilepsy Support Groups
St. Charles Hospital
200 Belle Terre Road, Port Jefferson
631-474-6489
Lorraine Sawyer: [email protected]

This group meets the second Monday of the month from 6:45-8:15pm.

Neurology Associates of Stony Brook
179 N. Belle Meade Road, Suite 3
East Setauket
Appointments: 631-444-2599
Administrative Office: 631-444-8188

South Shore Neurologic Associates at Brookhaven Memorial Medical Center for Individuals and Families
Epilepsy Patient Support Group
100 Hospital Road, 2nd Floor, Room 206 Patchogue
631-758-1910 x2111
631-666-3939

Free monthly support groups offered to anyone affected by epilepsy; call to register. This group meets on the third Tuesday of the month from 5:45-7:30pm.

Grandparent Information and Support Group
Cody Center for Autism and Developmental Disabilities
177 Putnam Hall, Stony Brook
631-632-8868
Patty Basche: [email protected]
This free group is for grandparents of children on the autism spectrum. It often features guest speakers and offers time for general discussion of concerns as well as mutual support. No meetings in February, August, or December.

Independent Group Home Living
221 N. Sunrise Service Road, Manorville
631-878-8900
[email protected]
A recreation program for children runs in conjunction with parent training and support group.

Long Island Sibshops
631-805-2100
Ann Winter: [email protected]
Sibshops are held monthly. Siblings of children with special needs will enjoy games, crafts, fun discussions, and meet other siblings of children with special needs.

The Mental Health Association in Suffolk County
2000 Arctic Ave., Bohemia
631-226-3900
[email protected]
Provides weekly support groups and counseling services for friends and relatives of persons with mental illness.

Our Little Heroes
Stony Brook Children’s Hospital
Division of Pediatric Hemotology & Oncology, HSC 11- 029, Stony Brook
631-444-7521
631-444-1024

Parent to Parent of NYS, Inc.
415A Oser Ave., Hauppage
631-434-6196
800-559-1729
Valerie Stammelman: [email protected]
Valerie Reid: [email protected]

A place where families of individuals with special needs and the professionals who serve them can meet and share information. This organization provides one-on-one parent support, assistance in accessing services, educational advocacy, workshops, e-groups, and a comprehensive website of resources. A parent matching program pairs adults, based on their request, with a trained support parent who has a child with a similar disability or health care concern.

Parents of Children on the Autism Spectrum
Stony Brook University, 100 Nicolls Road Putnam Hall, Room 173, Stony Brook
631-632-8844
[email protected]

Offers short-term groups for parents of children recently diagnosed with autism, Asperger’s syndrome, or PDD-NOS, focusing on helping parents develop a better understanding of autism and give an overview of services and helpful community resources. Offered several times a year; call to find out about next session.

Sibling Support Group
5 Medical Drive, Port Jefferson Station
631-632-8844
[email protected]

The Cody Center for Autism and Developmental Disabilities offers a weekly sibling support group for brothers and sisters of children with autism spectrum disorders. The group incorporates games, art projects, and discussion in an upbeat and supportive atmosphere. It is led by social worker Marlies Brandt. This group is offered several times a year; call to find out about the next available session.

Suffolk Independent Living Organization
2111 Lakeland Ave., Suite A, Ronkonkoma
631-320-1662

This group assists parents on the many issues surrounding the education of children with disabilities, including advocacy and legal, communication, housing and shelter, information and referrals, transportation, and training.



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