UPDATED OCTOBER 2014: Raising a child with special needs in Suffolk County, Long Island? Find support by connecting with other NYC families, parents, and caregivers in your community who have kids with special needs. Read on to find a group in Suffolk County.
Ariella’s Friendship Circle
The Chai Center of Dix Hills
501 Vanderbilt Parkway, Dix Hills
A Hebrew school for children with autism and special needs with New York state-certified special educators, individualized curriculum, multi-sensory programming, collaborative learning, dedicated and trained teen volunteers, and inclusion activities with The Hebrew School.
Asperger Syndrome and High Functioning Autism Association
Locations throughout Nassau and Suffolk counties
Offers daytime and evening meetings to discuss various topics involving the needs of school-age children. Check website for each group’s specific info.
Autism Society of America
4340 East-West Highway, Suite 350, Bethesda
Provides the latest information regarding treatment, education, research, and advocacy.
Children and Adults with Attention-Deficit/Hyperactivity Disorder Local Chapter of Suffolk County
P.O. Box 414, Centereach
Lorraine Dukich, membership chairperson:
This chapter offers a seven-session interactive program for parents and teens that covers developing behavioral intervention plans and analyzing effective parenting strategies for children and teens with behavioral issues.
Developmental Disabilities Institute Parent’s Association
99 Hollywood Drive, Smithtown
A nonprofit multi-site agency made up of parents, guardians, and friends of children and adults with autism and other developmental disabilities. Provides educational, residential, day habilitation, and vocational services, as well as dental services through Opti-Healthcare.
John T. Mather Memorial Hospital
75 N. Country Road, Port Jefferson
Monthly support group for people with eating disorders; parents, friends, and spouses welcome; registration is not required.
Epilepsy Support Groups
St. Charles Hospital
200 Belle Terre Road, Port Jefferson
This group meets the second Monday of the month from 6:45-8:15pm.
Neurology Associates of Stony Brook
179 N. Belle Meade Road, Suite 3, East Setauket
Administrative Office: 631-444-8188
South Shore Neurologic Associates at Brookhaven Memorial Medical Center for Individuals and Families
Epilepsy Patient Support Group
100 Hospital Road, 2nd Floor, Room 206, Patchogue
631-758-1910 x2111; 631-666-3939
Free monthly support groups offered to anyone affected by epilepsy; call to register. This group meets on the third Tuesday of the month from 5:45-7:30pm.
Grandparent Information and Support Group
Cody Center for Autism and Developmental Disabilities
177 Putnam Hall, Stony Brook
Patty Basche: firstname.lastname@example.org
This free group is for grandparents of children on the autism spectrum. It often features guest speakers and offers time for general discussion of concerns as well as mutual support. No meetings in February, August, or December.
Independent Group Home Living
221 N. Sunrise Service Road, Manorville
A recreation program for children runs in conjunction with parent training and support group.
Long Island Sibshops
Sibshops are held monthly. Siblings of children with special needs will enjoy games, crafts, fun discussions, and meet other siblings of children with special needs.
The Mental Health Association in Suffolk County
2000 Arctic Ave., Bohemia
Provides weekly supportive groups and counseling services for friends and relatives of persons with mental illness.
Our Little Heroes
Stony Brook Children’s Hospital
Division of Pediatric Hemotology & Oncology, HSC 11- 029, Stony Brook
Parent to Parent of NYS Inc.
415A Oser Ave., Hauppage
A place where families of individuals with special needs and the professionals who serve them can meet and share information. This organization provides one-on-one parent support, assistance in accessing services, educational advocacy, workshops, e-groups, and a comprehensive website of resources. A parent matching program pairs adults, based on their request, with a trained support parent who has a child with a similar disability or health care concern.
Parents of Children on the Autism Spectrum
Stony Brook University, 100 Nicolls Road Putnam Hall, Room 173, Stony Brook
Offers short-term groups for parents of children recently diagnosed with autism, Asperger’s syndrome, or PDD-NOS, focusing on helping parents develop a better understanding of autism and give an overview of services and helpful community resources. Only offered several times a year; call to find out about next session.
Sibling Support Group
5 Medical Drive, Port Jefferson Station
The Cody Center for Autism and Developmental Disabilities offers a weekly sibling support group for brothers and sisters of children with autism spectrum disorders. The group incorporates games, art projects, and discussion in an upbeat and supportive atmosphere. It is led by social worker Marlies Brandt. This group is only offered several times a year. Call to find out about the next available session.
Suffolk Independent Living Organization
2111 Lakeland Ave., Suite A, Ronkonkoma
This group assists parents on the many issues surrounding the education of children with disabilities, including advocacy and legal, communication, housing and shelter, information and referrals, transportation, and training.
Support Groups for Parents of Children with Special Needs in Nassau County, Long Island